Glossary of Terms

ASD - Autistic Spectrum Disorder: pretty self explanatory really (includes Aspergers).

SI - Special Interest: a subject that an Aspie finds almost obsessively fascinating.

NT - Neuro-Typical: someone who is not on the Autistic Spectrum.

OCD - Obsessive Compulsive Disorder: a mental health problem characterised by repetitive or obsessive behaviour in response to particular events or situations.

Sunday, 10 June 2012

The Vulnerability of I.

The human brain is an enigma, wrapped in mystery and carefully concealed in a massive stack full of brain-like objects. You may have heard of the many school shootings that occur in the world. You may think that it is just some sicko acting out his (or less likely her) disturbed fantasies, fantasies moulded by a violent upbringing. You'd assume that they were born like that. After all, they say that personality is fixed in human beings by the time that we are 22. You'd never do anything like that, how could you? The acts are repugnant and without justification. You are over 22 and you think that you will never really change.
 Well, I am afraid that I have some bad news. You're mind is the product of countless and highly complex so-called 'zombie' programs that you cannot consciously alter, each one responsible for a multitude of different operations. Your emotions, the way that you are feeling right now, is the result of chemical changes within your body and brain. Even small changes to the contained cosmos that is your body can throw the equilibrium that is you at this very point in time. Brain tumours may sound like they are just lumps in the brain and you'd be forgiven for thinking that they cannot change an individual completely. Forgiven , but still wrong.
The following is an extract from David Eagleman's book Incognito that both brilliantly and disturbingly illustrates just how fragile everything that you think you are is. It is a truly concerning read:

"On the steamy first day of August 1966, Charles Whitman took an elevator to the top floor of the University of Texas Tower in Austin. The twenty-five-year-old climbed three flights of stairs to the observation deck, lugging with him a trunk full of guns and ammunition. At the top he killed a receptionist with the butt of his rifle. He then shot at two families of tourists coming up the stairwell before  beginning to fire indiscriminately from the deck at people below. The first woman he shot was pregnant. As others ran to help her, he shot them as well. He shot pedestrians in the street and the ambulance drivers that came to rescue them.
                The night before Whitman had sat at his typewriter and composed a suicide note:
I do not really understand myself these days. I am supposed to be an average reasonable and
intelligent young man. However, lately (I cannot recall when it started) I have been a victim of
many unusual and irrational thoughts.
As news of the shooting spread, all Austin police officers were ordered to the campus. After several hours, three officers and a quickly deputised citizen worked their way up the stairs and managed to kill Whitman on the deck. Not including Whitman, thirteen people were killed and thirty-three wounded.
                The story of Whitman’s rampage dominated National headlines the next day. And when police went to investigate his home for clues, the story became even more grim: in the early hours of the morning before the shooting, he had murdered his mother and stabbed his wife to death in her sleep. After these first killings, he had returned to his suicide note, now writing by hand.
                It was after much thought that I decided to Kill my wife, Kathy, tonight… I love her dearly, and
                she has been a fine wife to me as any man could ever hope to have. I cannot rationally pinpoint
                any specific reason for doing this….
Along with the shock of the murders lay another, more hidden surprise: the juxtaposition of his aberrant actions and his un-remarkable personal life. Whitman was a former Eagle Scout and marine, worked as a teller in a bank, and volunteered as a scout-master for Austin Scout Troop 5. As a child he’d scored 138 on the Stanford Binet IQ test, placing him in the top 0.1 percentile. So after he launched his bloody, indiscriminate shooting from the University of Texas Tower, everyone wanted answers.
                For that matter, so did Whitman. He requested in his suicide note that an autopsy be performed to determine if something had changed in his brain – because he suspected it had. A few months before the shooting, Whitman had written in his diary:
                I talked to my doctor once for about two hours and tried to convey to him my fears that I felt overcome
by overwhelming violent impulses. After one session I never saw the doctor again, and since then I have
been fighting my mental turmoil alone, and seemingly to no avail.
Whitman’s body was taken to the morgue, his skull was put under the bone saw, and the medical examiner lifted the brain from its vault. He discovered that Whitman’s brain harboured a tumour about the diameter of a nickel. This tumour, called a glioblastoma, had blossomed from beneath a structure called the thalamus, impinged on the hypothalamus, and compressed a third region, called the amygdala. The amygdala is involved in emotional regulation, especially as regards fear and aggression. By the late 1800s, researchers had discovered that damage to the amygdala caused emotional and social disturbances. In the 1930s, biologists Heinrich Klüver and Paul Bucy demonstrated that damage to the amygdala in monkeys led to a constellation of symptoms including lack of fear, blunting of emotion, and overreaction. Female monkeys with amygdala damage showed inappropriate maternal behaviour, often neglecting or physically abusing their infants. In normal humans, activity in the amygdala increases when people are shown threatening faces, are put in frightening situations, or experience social phobias.
                Whitman’s intuition about himself – that something in his brain was changing his behaviour – was spot-on.
                I imagine it appears that I brutally killed both of my loved ones. I was only trying to do a quick
                thorough job…. If my life insurance policy is valid please pay off my debts…. Donate the rest
anonymously to a mental health foundation. Maybe research can prevent further tragedies
of this type.
Others had noticed the changes as well. Elaine Fuess, a close friend of Whitman’s, observed, “Even when he looked perfectly normal, he gave you the feeling of trying to control something in himself.” Presumably, that, “something” was his collection of angry, aggressive zombie programs. His cooler, rational parties were battling his reactive, violent parties, but damage from the tumour tipped the vote so it was no longer a fair fight.
 David Eagleman, Incognito: The Secret Lives of the Brain (London, 2011), pp. 151-3.
Copyright © David M. Eagleman, 2011. 

I feel that since I have posted an extract of his work, I should provide a link for people to buy it if they are as fascinated by it as I was: Buy Incognito on Amazon.com


Thursday, 31 May 2012

EMDR

Once again let me apologise profusely for not having kept up with my posting on this blog... again. I hate offering excuses as they are usually an attempt to dodge taking responsibility for a wrongdoing. However I do have a kind of excuse. No, my dog didn't eat my notes or keyboard and although my broadband is slower than an octogenarian attempting to traverse the Himalayas, it is still working. Come to think of it I'm certain that I have used this one before. Time.
I can only do so much time staring at a computer screen before developing headaches and my eyes start to feel weirder than Alice in Wonderland (seriously, how weird is that book/film. Someone must have been abusing certain substances). It actually effects my sleep. Close your eyes after using a computer for too long and you'll see images come to mind really easily and depending on what you've been working on this does not make for quality dreams and therefore quality sleep. You spent all night dreaming about research on neurological disorders and I can guarantee that you will not wake up feeling refreshed. Interested perhaps, but not refreshed. I can usually manage about 6 hours a day before any serious effects occur, but that has to include gaming too.
I've probably already mentioned that I'm an avid gamer. I love it; it's how I unwind on an evening after work though never after 8.00pm as the negative effects on sleep of time spent after this hour are particularly damaging. Light prevents the release of melatonin (also known as the sleep hormone) from the hypothalamus, so blasting the most light sensitive part of your body with bright light just before attempting to sleep is counter-productive.
Anyway, to get back to my excuse, I am currently writing for another blog (not my own and sadly unpaid), which is great, but it means that I have less time to write on my own. It's going well and my work seems to be appreciated and getting a lot of hits. I'm not going to disclose the name of it as I want to keep the two separate. Sorry... compartmentalising is one of my coping strategies, I hope you understand.
Now that my apology/excuse is out of the way (at surprisingly lengthy looking back at it!) I can get back to the title. An odd one I am sure you'd agree. EMDR stands for Eye Movement Desensitisation and pRocessing and is a anxiety management technique developed by Dr Francine Shapiro. Essentially, it is believed that anxiety is based in the right hemisphere of the brain, but that these feelings often cannot be rationalised or dealt with because reasoning skills are located in the left hemisphere. By quickly moving your eyes from left to right, communication between the two hemispheres is, through some complex quirk of neurobiology, increased thereby allowing the feelings to be suppressed.
I haven't tried this technique yet myself, but anything (safe and legal) that can help manage stress and anxiety is worth a go. Try it and see how it goes: I certainly will.

Thursday, 3 May 2012

I think that I may be a little depressed at the moment. Everything is various shades of grey and I can't enjoy things that I used to like being outside. Oh, wait, it's not just me? Everyone in Britain has the same symptoms as me? For the last month? Maybe it's not depression, maybe it's the terrible weather! (I blame the Met Office for issuing drought warnings across the country back in March!)


I usually like rain or I am at least curiously apathetic towards it. If I'm away in a Mediterranean country for too long I even start to miss it! But over four weeks of constant gloom and downpours is enough to drive anyone a little stir-fry crazy. A bit of sun would be nice; just enough for my body to be able to synthesise a little vitamin D. It does however make that hot mug of tea whilst sheltering indoors that bit more enjoyable. In all seriousness though, it is actually more than a little depressing. However, every cloud has a silver lining (please forgive the terrible pun, I am after all a little depressed!).

 Contrary to popular belief it isn't always raining in Britain; in fact this time last year we were basking in a miniature heat-wave. One stereotype that is true though, is that we do talk about the weather an awful lot. For an aspie who is socially challenged this is a Godsend. Two people who have absolutely bugger all in common can make small talk for at least as long as social mores dictate. The weather is something we all have in common and it changes often enough here to make it vaguely interesting. Hailing in May? Just something to use when you are next stuck chatting to someone that you don't really know. Thank God for British peculiarities!

Monday, 23 April 2012

Behold the turtle!

I heard a great saying the other day from one of my sort of heroes: Bear Grylls. "Behold the turtle; he only makes progress when he sticks his neck out" (i.e. you need to take risks to succeed). It's a great saying and is probably relevant to some people, for example those who enjoy base jumping, rock climbing without ropes and drinking water squeezed from a camel turd; but sadly not for me. I like my neck, one could even say that I am somewhat attached to it.

On a separate note there was an article in this weeks newspapers about having regrets is actually useful to have; but not if you are an OAP. The reasoning is that they act as motivation for you not to make the same mistake twice and I guess that they are right (consolation for me still thinking about Marie). If you are elderly though they can bring you down as you don't have enough time left to either correct them or be in a similar situation and thus apply the lesson that you learnt last time. So for me at least there is still hope, but time waits for no one...

Thursday, 19 April 2012

Two Little Words

Having had my ambitions override my common sense more times than I care to imagine and gotten myself into unpleasant situations because of it, you could probably forgive me for being incredibly cautious about committing to anything. I don’t take huge risks, even a 10% probability of failure makes me think twice. I have to be as thoroughly informed about a situation before binding myself to a particular course of action. As I always think things through comprehensively it means that I always know exactly why I have done what I have done. It means I have very few regrets. However, you would not be human if you didn’t have at least a few.

Two words that are guaranteed to cause no small amount of discomfort to an individual are “what” and “if”. Everyone thinks these words. What if I had done better at that exam? What if I had taken that route home instead of this one? What if I had chosen a different career? What would have been different? Dwell on them too much and it can consume you and degrade what you already have. You can become trapped in this train of thought as it dominates your existence. You focus entirely upon the past and ignore the present.
This is what has been happening to me over the last few weeks. My one real regret in life revolves around somebody that I used to know (why does writing those words make the song “somebody that I used to know” by Gotye immediately pop into my head? I’m starting to think that they are playing far too much on the radio). I used to know a girl called Marie and we started working together in the local café when I was sixteen. She was one of the kindest and sweetest people that I have ever known and we got on well. One day I found out that she had a crush on me and I didn’t really know how to deal with that (it was not long after that I was diagnosed with Aspergers). My feelings towards her were conflicted and I wasn’t sure if I loved her back. I never really resolved these emotions and left her hanging on. I didn’t know this at the time, but looking back this was really cruel on my part and I freely admit that I behave like a total ba*t*rd. The way her beautiful blue eyes lit up when I mentioned how beautiful they work made me feel emotions that I haven’t really felt since. After I finished school and had my first major breakdown I started to realise that I did actually love her. How could I not, she was kind and caring and always had time for me.

 I was so close to asking her out but after starting university I had my second major nervous breakdown and as my world around me imploded I started to see that I could not invite her into my life to share in my suffering. To take her down with me would be more than I could bear. By that point she too had started at a different university but still came back in the first winter holidays to work at the café. I had stopped working there by then but still saw her around during those weeks. I still kept my silence though it became so painful that I could no longer bear to see her and started avoiding her which must have hurt her too. For that I am truly sorry. That was the last time that I saw her.

I was reminded of her recently when playing Mass Effect 3 (I’m a huge, huge fan/geek when it comes to the Mass Effect series. They say you’re either Star Trek or Star Wars: well I’m Mass Effect). One of the characters in those games (Liara T’Soni) who always reminds me of Marie. It makes me wonder what if I had asked her out? Would things have turned out differently? Now I know about my condition I realise that she would have been perfect for me and I realise now that I did love her. I could find her again but the situation would not be the same. She is probably happy with someone else and I could not risk bringing pain into her life. Maybe she’s changed. I certainly know that I have. All I can do is think: “what if?” which brings back both fond and painful memories (the song “For the rest of my life” by Gary Numan probably best expresses how I feel). I hope she knows that I am sorry and that I wish her happiness wherever she is. I need to focus on the present and future more. It’s like that song by Jay Livingston, “Que Sera, Sera (whatever will be, will be)”. In fact, that seems like the perfect counter to “what if”. Writing things down really does help you with your problems.

Tuesday, 10 April 2012

Alternative Therapies: Reflexology

I have very little time for the majority of alternative therapies; at the very least I am a sceptic. I like to think that I am open minded, but when people rave about homeopathy, acupuncture or reiki, I am ashamed to say that my mind becomes more closed than North Korea. I have tried hypnotherapy before but the effects were limited to the degree that I had no idea if there were any; on top of that  it cost an arm and a leg and so that therapy went out of the window pretty quickly. Reiki too did absolutely bugger all. I have a fear of needles, so acupuncture seems about as appealing as swimming with Great White sharks. Have you ever heard of urine therapy? No? Then it’s probably for the best as it is about as gross as the name would imply (I didn’t even consider trying that one for even a second; google it and you’ll see why).

It was with these opinions that I decided to give reflexology a whirl. I had just finished university and a lifetime in full-time education and entering the world of career first. Perhaps not surprisingly I had a nervous breakdown. I was prepared to leap on any opportunity to relieve the physically exhausting anxiety that didn’t involve illegal substances, alcohol or any of the therapies that I have been bad-mouthing above. A friend of my mum’s had been having reflexology for years and suggested it for me. No matter how weird the therapy is, there is always someone who swears by it (magnet therapy anybody?!?). However I knew this lady well and trust her and decided that I’d give it a go.

Several years later and I now feel that I have done it enough to confirm that it does actually help to reduce anxiety; well, at least for me it does. Maybe it’s the opportunity to take the weight off your feet for a bit whilst someone massages them than anything to do with energy lines or channels. The science certainly seems to suggest that this is the case. I now feel comfortable around my reflexologist and she acts as a sort of agony aunt, which I suppose could help too. I suggest trying a couple of sessions and seeing if you feel any different because if there’s a chance that it could help you deal with the negative aspects of being an Aspie, then it is worth a go.

Monday, 9 April 2012

Still Alive!

It's over a year since I started this blog and almost as long since I last posted! I'm sorry about that and would not be surprised if I have lost all two of my dedicated readers! The last few months have been quite tricky involving not a small amount of conflict with my sister. We have never really got on as although we are both opinionated, we have different views on almost everything. Fights with siblings are sadly not uncommon for the Aspie as a great deal of patience and understanding are needed to deal with us; something that she alas does not have. That is not  bad in a normal environment but when living with an Aspie it is necessary to have a great deal of it. She was living at home whilst searching for a job in London, which she now has (thank God!) and so has now moved back out. So now I am a little more relaxed and can at last get some creative inspiration. Here's hoping!